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Children and Young People: Palliative Care

Use this guide to find information resources about children and young people's palliative care including books, reports and journal articles.

Last updated: 17/09/2024

Key Resources

Publication Cover 天美传媒 (2018) RCN competencies: caring for infants, children and young people requiring palliative care. 2nd edn. London: RCN.
Blackburn M et al. (2019) Talking about sex, sexuality and relationships: guidance and standards. For those working with young people with life-limiting or life-threatening conditions. Bristol: Together for Short Lives.
Brook L (ed.) (2024) Association of Paediatric Palliative Medicine master formulary. 6th edn. 
Chambers L and Kelly K (2023) Stepping up: A guide to developing a good transition to adulthood for young people with life-limiting and life-threatening conditions. Bristol: Together for Short Lives.
Jassal S S (ed.) (2022) Basic symptom control in paediatric palliative care. 10th edn. Bristol: Together for Short Lives.
Together for Short Lives (2019) Caring for a child at end of life. A guide for professionals on the care of children and young people. Bristol: Together for Short Lives.
Together for Short Lives (2018) Hidden lives: tackling the social exclusion of families caring for a seriously ill child. Bristol: Together for Short Lives.
Together for Short Lives (2018) A guide to children’s palliative care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 4th edn. Bristol: Together for Short Lives.

We would like to thank the RCN CYP Palliative Care community and  Sue Langley - Library & Information Services Manager, East Anglia’s Children’s Hospices, for their input into the development of this subject guide.




Books

Bellieni-New-holistic Bellieni C V (2022) A new holistic-evolutive approach to pediatric palliative care. Cham: Springer Nature.
Bruera-textbook-of-palliative-medicine Bruera E, Higginson I J, Gunten C F von and Morita T (2021) Textbook of palliative medicine and supportive care. 3rd edn. Milton: CRC Press.
Cooper-Palliative-care Cooper D B and Cooper J (eds.) (2019) Palliative care within mental health: ethical practice. Milton: Routledge.
Davies-Pediatric-palliative-care Davies B, Steele R and Baird J (2022) Pediatric palliative care: a model for exemplary practice. Oxford: Routledge.
Downing-Childrens-palliative-care Downing J (ed.) (2020) Children's palliative care: an international case-based manual. Cham: Springer. 
Hain-Oxford-textbook-of-palliative-care Hain R, Goldman A, Rapoport A and Meiring M (2021) Oxford textbook of palliative care for children. 3rd edn. Oxford: Oxford University Press. 
Limbo-Handbook-of-perinatal Limbo R K, Wool C and Carter B S (2020) Handbook of perinatal and neonatal palliative care: a guide for nurses, physicians, and other health professionals. New York: Springer.    
Book cover Mancini A, Price J and Kerr-Elliott T (eds.) (2020) Neonatal palliative care for nurses. Cham: Springer.
Book cover Nash P, Hussain Z, and Parkes M (2015) Multifaith care for sick and dying children and their families: a multi-disciplinary guide. London: Jessica Kingsley.
Book cover Nash S, Nash P, and Darby K (2015) Spiritual care with sick children and young people: a handbook for chaplains, paediatric health professionals, arts therapists and youth workers. London: Jessica Kingsley.
Preedy-Handbook-of-nutrition Preedy V R (2019) (ed.) Handbook of nutrition and diet in palliative care. 2nd edn. Milton: CRC Press.
Rodriguez-Death-dying Rodriguez A M (2023) Death, dying and palliative care in children and young people: perspectives from health psychology. Milton: Routledge.
Watson-Oxford-handbook Watson M, Ward S, Vallath N, Wells J and Campbell R (eds.) (2019) Oxford handbook of palliative care. 3rd edn.  Oxford: Oxford University Press. 

Chapter 16 covers paediatric palliative care.  
Watson M (2016) Palliative adult network guidelines and paediatric palliative care guidelines. 4th edn. Academic Health Science Network.

Book subject searches

Use these links to see details of books the RCN libraries hold on each topic.

Journal articles

Use these links to see details of journal articles on each topic.

Journals

Book cover Journals of interest for children and young people palliative care. Use these links to see details of availability.

This subject guide relates to:

RCN Library staff

Nadia Munir

Editor of this guide

RCN Library and Museum

Upcoming events relating to this subject guide

Page last updated - 17/09/2024